How do you mentally get through something as awful as Guillain-Barre Syndrome? Physically surviving and fighting is hard enough. I cannot adequately explain the terror of GBS. No one could tell me why I got it, how bad it would get, if I would recover, how long until I could walk again, if my face … Continue reading Books to Fight the Battle
Month: April 2018
Training Wheels
When I was a little girl in West Virginia, I would spend hours riding my bike at the family farm. If it was too dark to ride outside, I'd ride in circles in the big garage while grandma was canning in the boot room. Without discussing it with me, grandpa took the training wheels off … Continue reading Training Wheels
Southern Belles Palsy
One of the questions I am most often asked by other GBS fighters is, "How long until your face went back to normal?" It's been a year and two months since I was diagnosed with Guillain-Barre Syndrome and most people can't tell that half my face and most of my body was paralyzed. But I … Continue reading Southern Belles Palsy
What helps?
I'm not a doctor so none of this is medical advice. However, I am a GBS fighter and I want to share the things that have helped me with this battle. In the hospital Memory foam mattress pad: I had excruciating back pain and the hard hospital beds certainly did not help. My mom bought … Continue reading What helps?
Smile at Dawn
So here we are…
Whether you've seen me on TV, read my book, worked with me, laughed with me, or just generally know of me... thanks for visiting my website. In 2017 I was diagnosed with a rare disease called Guillain-Barre Syndrome (GBS). I can't even begin to explain how terrifying it is to lose your ability to move … Continue reading So here we are…
