Books to Fight the Battle

How do you mentally get through something as awful as Guillain-Barre Syndrome?  Physically surviving and fighting is hard enough. I cannot adequately explain the terror of GBS. No one could tell me why I got it, how bad it would get, if I would recover, how long until I could walk again, if my face … Continue reading Books to Fight the Battle

Training Wheels

When I was a little girl in West Virginia, I would spend hours riding my bike at the family farm. If it was too dark to ride outside, I'd ride in circles in the big garage while grandma was canning in the boot room. Without discussing it with me, grandpa took the training wheels off … Continue reading Training Wheels

Southern Belles Palsy

One of the questions I am most often asked by other GBS fighters is, "How long until your face went back to normal?" It's been a year and two months since I was diagnosed with Guillain-Barre Syndrome and most people can't tell that half my face and most of my body was paralyzed. But I … Continue reading Southern Belles Palsy

What helps?

I'm not a doctor so none of this is medical advice. However, I am a GBS fighter and I want to share the things that have helped me with this battle. In the hospital Memory foam mattress pad: I had excruciating back pain and the hard hospital beds certainly did not help. My mom bought … Continue reading What helps?