'Twas two years ago on this date that I was diagnosed with Guillain-Barre Syndrome. If you know anything about GBS, that's a horrifying diagnosis. But I didn't really know anything about GBS and was relieved just to have a diagnosis. I had been in the hospital for a week at this point and continued to … Continue reading GBS’iversary
First and foremost, I'm not a doctor so don't take this (or anything else I write) as medical advice. I am however a GBS fighter. At this point I am almost two years out from my initial diagnosis and boy have I learned a lot. So I'd like to take a moment to enlighten newly … Continue reading So You’ve Been Diagnosed with GBS… Now What?
I was diagnosed with Guillain Barre Syndrome on February 11th, 2017 after several days in the hospital and allllllllllllllllllllllll the tests. When I was diagnosed, I was reassured that 90% of GBS patients make a full recovery. I don’t think “full recovery” is an appropriate term to use because it gives us false hope for … Continue reading Making Your Way Through GBS
One of the most common struggles after GBS is the fatigue. Ohhhhh the fatigue. I'm not talking mid afternoon yawns and you need a cup of coffee. I'm talking mid afternoon debilitating fatigue. Struggling to move fatigue. I assumed this fatigue, my fatigue, was normal for a GBS'er. I had accepted that this fatigue was … Continue reading Do You Have a PCP?
I went to my first volleyball camp when I was in middle school, and that is when I fell in love with the sport. Everyone expected me to be a great basketball player but my heart just wasn't in it. Volleyball is where I excelled. I began playing on my school team in 7th grade. … Continue reading Getting back to my first love…
You may have noticed that I didn't write last week. As much as I try to stay positive and not let GBS win, some days are better than others. Last week started off with numb feet on Monday. I had gone to the gym every day the week before and my body was letting me … Continue reading Some Days > Other Days
How do you mentally get through something as awful as Guillain-Barre Syndrome? Physically surviving and fighting is hard enough. I cannot adequately explain the terror of GBS. No one could tell me why I got it, how bad it would get, if I would recover, how long until I could walk again, if my face … Continue reading Books to Fight the Battle