I was diagnosed with Guillain Barre Syndrome on February 11th, 2017 after several days in the hospital and allllllllllllllllllllllll the tests. When I was diagnosed, I was reassured that 90% of GBS patients make a full recovery. I don’t think “full recovery” is an appropriate term to use because it gives us false hope for … Continue reading Making Your Way Through GBS
One of the most common struggles after GBS is the fatigue. Ohhhhh the fatigue. I'm not talking mid afternoon yawns and you need a cup of coffee. I'm talking mid afternoon debilitating fatigue. Struggling to move fatigue. I assumed this fatigue, my fatigue, was normal for a GBS'er. I had accepted that this fatigue was … Continue reading Do You Have a PCP?
I went to my first volleyball camp when I was in middle school, and that is when I fell in love with the sport. Everyone expected me to be a great basketball player but my heart just wasn't in it. Volleyball is where I excelled. I began playing on my school team in 7th grade. … Continue reading Getting back to my first love…
You may have noticed that I didn't write last week. As much as I try to stay positive and not let GBS win, some days are better than others. Last week started off with numb feet on Monday. I had gone to the gym every day the week before and my body was letting me … Continue reading Some Days > Other Days
How do you mentally get through something as awful as Guillain-Barre Syndrome? Physically surviving and fighting is hard enough. I cannot adequately explain the terror of GBS. No one could tell me why I got it, how bad it would get, if I would recover, how long until I could walk again, if my face … Continue reading Books to Fight the Battle
When I was a little girl in West Virginia, I would spend hours riding my bike at the family farm. If it was too dark to ride outside, I'd ride in circles in the big garage while grandma was canning in the boot room. Without discussing it with me, grandpa took the training wheels off … Continue reading Training Wheels
One of the questions I am most often asked by other GBS fighters is, "How long until your face went back to normal?" It's been a year and two months since I was diagnosed with Guillain-Barre Syndrome and most people can't tell that half my face and most of my body was paralyzed. But I … Continue reading Southern Belles Palsy